This site was created to help cancer patients receive the pain treatment they deserve. It contains information about cancer pain, its causes and available treatments as well as links to online groups.
OncoChat is a real-time global support community for people whose lives have been touched by cancer. Oncochat doesn’t offer medical advice or professional counseling. Oncochat does offer lots of hugs and understanding from people who share similar experiences and emotions.
Assocation of Cancer Online Resources
UPenn site on accurate cancer information
A guide to internet resources for cancer
BOOKS & REPORTS
|The Stop Cancer Before It Starts Campaign:
How to Win the Losing War Against Cancer
By: Samuel S. Epstein, M.D. (2003)
|The Safe Shopper’s Bible
A Consumer’s Guide to Nontoxic Household Products, Cosmetics and Food
By: David Steinman and Samuel S. Epstein, M.D. (1995)
Or order directly from the publisher: Hungry Minds, Inc. | Phone: (800) 434-3422 or (317) 572-3993 | Fax: (317) 572-4002 | ISBN # 0020820852
NATIONAL AND INTERNATIONAL CANCER ORGANIZATIONS
• American Association for Cancer Research (USA) Founded in 1907; the AACR is a scientific society of over 15,000 laboratory and clinical cancer researchers. The site provides details of the organisation, conferences, publications, mebership, journals etc.
• American Brain Tumour Association (USA) A non-profit organisation founded in 1973 dedicated to the elimination of brain tumors through research and patient education services.
• American Cancer Society (USA) A non-profit organisation with over 3400 offices located in all 50 states, plus Puerto Rico. The site has information for both the public and health professionals including information about ACS programs, specific cancers, local branch details etc.
• American Head and Neck Society AHNS is a professional organisation, formed in 1998 to promote research and education in head and neck oncology. The Web site includes clinical practice guidelines, details of events, grants, and patient information.
• American Society for Therapeutic Radiology and Oncology (USA) ASTRO is a professional organisation which aims to promote excellence in the practice of radiation oncology, scientific research and in patient care. The site has details of membership, events, patient information etc.
• American Society of Clinical Oncology (USA) ASCO Online includes information for health professionals and for people living with cancer. Details of meetings, abstracts, membership etc.
• American Society of Pediatric Hematology/Oncology (USA) ASPHO was founded in 1981 and is a professional society dedicated to the study and treatment of childhood cancer and promote care, education and research. The web site includes details of membership, meetings, resources etc
• American Thoracic Society An independently incorporated, international, educational and scientific society, founded in 1905, with a focus on respiratory and critical care medicine. There is a detailed public site with detailed information and also a members area.
• Aplastic Anemia and MDS International Foundation, Inc. This organisation, formerly know as Aplastic Anemia Foundation of America was founded in 1983. It provides a resource directory for patient assistance, produces educational material and supports research into AA and MDS.
• Asociacion Espanola Contra el Cancer
• Association for International Cancer Research (UK) AICR is an independent Scottish based charity funding research into the cause and prevention of cancer by eminent and promising scientists throughout the world. Site includes mission statement, donations, grant application forms etc.
• Association for Molecular Pathology (USA) A national organization, established to promote clinical practice, basic research, and education in molecular pathology. The Web site has details of membership, details of subdivisions – including the solid tumor group, meetings and announcements.
• Association of Cancer Online Resources (ACOR) This site contains CancerNet, archives of cancer email lists, and patient oriented web pages.
• Association of Community Cancer Centers ACCC was founded in 1974 to represent oncology practitioners in the community. The Web site includes details about the Association, state level chapters, meetings, publications, news and related information.
• Australian Cancer Society The ACS is a national federation of community-based cancer organisations, each of which is the expert centre for cancer control in its own State or Territory. ACS activities include treatment, research, education, and support.
• Barncancerföreningarnas Riksförbund – Children Cancer Foundation of Sweden. (Sweden) Swedish language.
• Bone Marrow Donors Worldwide A collaborative international organisation collecting the HLA phenotypes of volunteer marrow donors and cord blood units, and coordination of their worldwide distribution. The Web site has details of participating registries, search and matching tools.
• Brain Tumor Foundation of Canada A national, not-for-profit organization, founded in 1982 to provide support to people affected by brain tumors. The Web site has both English and French language pages which provide details of the organisation, its services, events, collaborations.
• Brain Tumor Society (USA) Resources for both patients, relatives, and health professionals
• British Association for Cancer Research (UK) The BACR was formed in 1960 to advance cancer research and encourage the exchange of information. This site includes details about membership, meetings, and fellowships.
• British National Lymphoma Investigation (UK) The BNLI was formed in 1970 to coordinate medical research into the diagnosis and treatment of lymphomas, and is involved in running clinical trials and other research.
• Caitlin Raymond International Registry (USA)
• Canadian Breast Cancer Research Initiative – recherche sur le cancer du sein (Canada) CBCRI is a collaboration of major national breast cancer / research organisations founded in 1993. English and French language support. The web site includes information about CBCRI, research, cancer statistics etc.
• Canadian Cancer Society (CCS) / National Cancer Institute of Canada (Canada) CCS was founded in 1938, this web site provides details of the divisions, services, and mission of the CCS. There are details of the Cancer Information Service (toll free help line). Information is in both English and French language.
• Cancer and Leukemia Group B (CALGB) (USA) multidisciplinary cooperative cancer treatment group, NCI / NIH
• Cancer BACUP (UK) A UK cancer charity providing information and support for cancer patients. The site offers detailed cancer information for many types of cancer and a wide range of related topics written by oncologists specifically for cancer patients.
• Cancer Research Foundation of America (USA) a national non-profit organization launched in 1985 committed to cancer prevention through research and education.
• Cancer Research Institute (USA) Supports national research into new cancer treatments, especially immunotherapy
• Cancer Research UK This is the largest volunteer-supported cancer research organisation in the world, formed in February 2002 following the merger of The Cancer Research Campaign and Imperial Cancer Research Fund. The site includes information on about cancer and research.
• Cancer Society of Finland Founded in 1936, the Cancer Society of Finland is a national public health organisation composed of 12 regional cancer societies and four patient organisations. The Web site includes details of the Society and has some English language pages.
• Cancer Society of New Zealand A non-profit organization with six regional divisions; devoted to providing support, education, and funding of cancer research in New Zealand. Includes cancer related information in dowloadable PDF file
• CancerHelp UK An educational Web site of Cancer Research UK. It includes information by cancer type and answers to frequently asked questions.
• Candlelighters Childhood Cancer Foundation (USA) The CCCF is a non-profit organisation which aims to educate, support, serve, and advocate for families of children with cancer, survivors, and health professionals. CCCF was founded in 1970 now has over 43,000 members worldwide.
• Candlelighters Childhood Cancer Foundation of Canada (Canada) This site provides details about the foundation and includes a comprehensive resource center with details of booklets, vidios, and other support material.
• Children’s Brain Tumor Foundation (USA) The CBTF is a non-profit organization founded by families, friends and physicians of children with brain tumors; the foundation raises funds for research. This site includes details of services and events, and articles about brain tumours
• Children’s Oncology Group Soft Tissue Sarcoma Committee (COG STS) (USA) COG STS is funded by the National Cancer Institute and conducts research into rhabdomyosarcoma. The web site includes material for public and health professionals including details about the disease and information about clinical trials.
• Coalition of National Cancer Cooperative Groups, Inc (USA) founded in 1997 by six of Cancer Cooperative Groups that are funded primarily by the National Cancer Institute (NCI). The web site includes details about the CNCCG and its programmes.
• Cure for Lymphoma Foundation (USA) a national research organisation with a focus on lymphomas
• Danish Cancer Society – Kræftens Bekæmpelses The Danish Cancer Society was founded in 1928 and now has over 250,000 members organised into 160 local units. The Web site includes an English language page with details of the society and cancer registry.
• Eastern Cooperative Oncology Group (ECOG) (USA) ECOG, established in 1955, is a large cooperative group running clinical trials in adult cancers. As well as information for members there is a public area including details of ECOG, clinical trials, participating institutions, publications etc.
• European Association for Cancer Research EACR was founded in 1968 and aims to advance cancer research by facilitating communication between research workers including the organization of meetings. Details about the organization, membership, fellowships, publications, meetings etc.
• European Association for NeuroOncology EANO is an organisation for Neurooncologists in Europe formed in 1994. This site includes a background to the organisation, membership details, reports from scientific meetings, clinical trial details, a calendar of events, and links to related sites
• European Group for Blood and Marrow Transplantation (EBMT) The Web site includes lists of on-going EBMT trials, transplant guidelines, news and publications by working party. There are also links to the password protected registry servers.
• European Intergroup Ewing’s Sarcoma Study Historical details of the EICESS ’92 trial, now closed to entry. EICESS is a collaboration of groups and treatment centres in Germany, UK, Netherlands, and elsewhere.
• European Organisation for Research and Treatment of Cancer (EORTC) The organisation was founded in 1962 in order to conduct experimental and clinical research in Europe. The EORTC central office is in Brussels.
• European Society for Medical Oncology (ESMO)
• European Society for Therapeutic Radiation and Oncology (ESTRO) ESTRO, founded in 1980 is a society for professionals involved in the field of radiotherapy and oncology. The Web site includes details about the organisation, research, publications, events and other related information.
• Federation Nationale des Centres de Lutte Contre le Cancer (FNCLCC) A French language site.
• Federation of European Cancer Societies FECS is a non-profit scientific organisation, founded in 1981, to promote and coordinate collaboration between European societies. The Web site includes details about FECS, membership, programs, conferences and contact information.
• Food and Drug Administration (USA) FDA is the primary governmental consumer protection agency. The Web site includes details of the Center for Drugs Evaluation and Research and other relevant sections on toxicology, medical products and radiological health.
• Foundation for the Children’s Oncology Group (formerly the National Childhood Cancer Foundation) (USA) The FCOG is a non-profit organization which supports pediatric cancer treatment and research projects in association with The Children’s Oncology Group (COG). This site includes information, inspiring stories, news, and links to WWW resources.
• German Cancer Research Centre (Heidelberg)
• German Childhood Cancer Registry This registry, based in Mainz, covers a population of 13.2 million children with cases for Western Germany from 1980 and for Eastern Germany since 1991. The Web site includes details of research studies and publications. English and German language.
• Gesellschaft fur Padiatrische Onkologie und Hamatologie (GPOH) (Germany) The GPOH is a professional society of specialist doctors treating children’s cancer in Germany. The activities of the GPOH include running clinical trials. German language.
• Health Canada – Cancer Bureau (Canada) The Bureau conducts and is developing cancer surveillance programs and risk assessment networks. Details about the bureau and its divisions, publications, links etc. English and French Language.
• Hellenic Cancer Society Greek and English language
• Histiocyte Society Hosted at The Texas Children’s Cancer Center and Hematology Service this Web site provides details about the Histiocyte Society, information about histiocytosis etc.
• Icelandic Cancer Society The Society was founded in 1951 and is an association composed of 24 local voluntary cancer divisions and patient organisations. The Web site has English language support and includes details of programs and the national registry.
• Instituto Nacional de Cancer (Brazil) INCA is a body of the Ministry of Health responsible for the national cancer control program. The Web pages include both Spanish and English language pages with details of services, research, and education and tobacco control.
• Intercultural Cancer Council (USA) The ICC aims to promote policies to improve care and treatment in minorities and medically underserved cancer patients.
• International Agency for Research on Cancer (IARC) based in Lyon, France. The IARC was founded in 1965 by the World Health Organisation to coordinate and conduct research into the causes and control of cancer, particularly by epidemiological and laboratory studies
• International Bone Marrow Transplant Registry / ABMTR This is the home page for The IBMTR and Autologous Blood and Marrow Transplant Registry of North America. Information for patients, publications, statistical center, newsletter etc.
• International Cancer Alliance for Research and Education (ICARE) A patient oriented non-profit organisation providing information and other services.
• International Myeloma Foundation This site contains details of the IMF, telephone hotline, and information packs. Online resources include a newsletter, email discussion group, and patient handbook. Also there is information for researchers: grant applications etc.
• Irish Cancer Society (Ireland) The Society was founded in 1963 and is a national charity dedicated to cancer care, research and education. The web site includes details of the society’s programs and support groups.
• Israel Cancer Association (Israel) The Association was founded in 1952, and the web site contains details of ICA, description of services, public awareness resources, research information etc. The site includes English language support.
• Italian Association for Medical Oncology AIOM is the scientific society for Italian medical oncologists, founded in 1973. The Web site includes Italian and English language pages.
• Italian Institute of Cancer Research Genova (Italian Language)
• Josep Carreras International Leukaemia Foundation Spanish and English language support. JCILF was founded in 1988 at the behest of the tenor Josep Carreras, and funds leukemia research and the Redmo register of marrow donors. Details of the foundation and grant applications.
• Lega Italiana per la Lotta contro Tumori – Italian League for the Fight Against Cancer (Rome, Italy) a non-profit, volunteer organization involved in cancer education, support, and research. Italian language.
• Leukaemia Research Fund (UK) A national cancer charity funding research into leukaemia and other types of cancer. The site includes online patient information booklets, and research abstracts.
• Leukemia and Lymphoma Society (USA) a national voluntary health agency dedicated to curing leukemia, lymphoma, multiple myeloma, and Hodgkin’s disease. The web site includes details of the 58 chapters of the society, information booklets, patient services, research etc.
• Lymphoma Research Foundation Canada / Fondation Canadienne sur le Lymphome (Canada) A non-profit organisation founded in 1998 with the aim of providing support to patients and funding research. The site contains information about the organisation, about lymphomas, research, services etc. English and French language support
• Lymphoma Research Foundation of America (USA) LRFA raises money for research and provides patient support and information. It was founded in 1991 by a patient with NHL. The Web site includes details of services, information about lymphoma, research grants etc.
• Medical Research Council (UK) The MRC is a government funded body involved in medical research, including clinical trials and research into cancer.
• Musculoskeletal Tumor Society A non-profit organization bringing together orthopaedic surgeons and other physicians to forward musculoskeletal oncology research. MSTS was founded in the early 1980’s and has members accross North and South America
• National Alliance of Breast Cancer Organizations (NABCO) (USA) Founded in 1986, NABCO is a non-profit organisation with over 400 member organizations providing information for physicians, patients and their families. The site includes information on cancer, clinical trials and support groups.
• National Brain Tumor Foundation (USA) a non-profit organisation dedicated to raising funds for research and to providing support to patients and their families. The web site includes information about tumor types, treatments, clinical trials, FAQ, news, physician’s resources etc.
• National Brain Tumor Radiosurgery Association (USA) Founded in 1997, NBTRA is a patient support and information organization for those who have had or may have stereotactic radiosurgery brain tumor treatments. The Web site has a summary of the organization and contact information.
• National Cancer Center (Japan) Information in both English and Japanese
• National Cancer Control Initiative (Australia) The NCCI was launched in 1997 advise on cancer control, it is a partnership of the Australian Cancer Society and the Commonwealth. The site includes information on specific projects, publications, links etc.
• National Cancer Institute (USA) The NCI is one of the National Institutes of Health and is a major funder of research in the USA. Online cancer information includes CancerNet PDQ statements for patients and physicians.
• National Cancer Institute of Canada – Clinical Trials Group The NCIC Clinical Trials Group offices are located at Queen’s University at Kingston. The group conducts national and international clinical trials. The Web site includes details of current trials, publications, details of meetings and related news.
• National Cancer Research Institute (UK) A partnership between government, charitable and private sector member organisations aiming to streamline and accelerate cancer research by co-ordinating and developing strategic research partnerships.
• National Children’s Leukemia Foundation (USA) The NCLF is a non-profit organization providing services, support, and referrals for leukemia patients and their families.The site provides details of their telephone help line, and information on various topics related to childhood leukemia.
• National Comprehensive Cancer Center Network (USA) a non-profit organisation founded in 1995.
• National Foundation for Cancer Research (USA) The NFCR was founded in 1973 to support laboratory based basic science research. The site includes detailed information on research projects, cancer prevention, treatment, FAQs, contact information etc.
• National Kidney Cancer Association (USA) The NKCA is a non-profit organisation, founded in 1990. Members include patients, family, researchers, and health professionals. The site includes details of the organisation, information services etc.
• National Marrow Donor Program (USA) NMDP is a government funded organization which maintains a computerized registry of volunteer donors.
• National Neurofibromatosis Foundation (USA) A non-profit organisation founded in 1978. The Web site includes details of local chapters, youth programs, research, publications. There is a separate area for NF professionals and scientists which includes the World Wide NF Clinicians’ Forum.
• National Organization for Rare Disorders, Inc The site includes a searchable database of rare diseases.
• National Translational Cancer Research Network (UK) A DoH funded national network of translational cancer research centres, embedded in the NHS, that iaims to ntegrate scientific and clinical expertise, and shares knowledge and resources for the benefit of patients.
• National Wilms’ Tumor Study Group (USA) The NWTSG is a national collaborative group established in 1969. NWTSG runs clinical trials and other research with the aim of improving treatment for Wilms’ tumor. The site includes a detailed bibliography, FAQ and patient information.
• Nederlandse Kankerbstrijdng – Dutch Cancer Society Dutch language
• Netherlands Cancer Institute / Antoni van Leeuwenhoek hospital (Netherlands) This is a national oncology hospital and research centre located in Amsterdam. The Web site includes pages in both Dutch and English with detailed information about research, services, courses and contact information.
• Neuroblastoma Society, The (UK) The Neuroblastoma Society is a charity offering parental support to families with children with neuroblastoma. The web site includes a downloadable booklet for parents, a newsletter, medical update, and other information.
• North American Association of Central Cancer Registries The NAACCR was established in 1987 and is a collaborative umbrella organisation for cancer registries, governmental agencies, professional associations, and other groups interested in enhancing the quality and use of cancer registry data.
• North Central Cancer Treatment Group (USA) founded in 1977 the NCCTG is an affiliation of approximately 20 community clinics throughout the United States with a research base located at Mayo Cancer Center. The web site includes details of the group and the clinical trilas it runs.
• Norwegian Cancer Society – Den Norske Kreftforening NCS is a national voluntary organization with over 170,000 members. The Web site provides details of the society including member organisations, research, patient support, and international activities. It includes English language pages.
• OncoLink An extensive site by the University of Pennsylvania providing cancer specific information. OncoLink was one of the first cancer sites on the Internet.
• Oncology Nursing Society (USA) This is a professional organisation of over 27,000 registered nurses and other healthcare professionals founded in 1974. The Web site has information areas for ONS Members, health providers and patients. Users are required to register.
• Organization of European Cancer Institutes OECI is a non-governmental, non-profit organisation founded in 1979 to increase communication and collaboration among European cancer institutes. The Web site includes detailed information about the organisation, activities, reports and member institutes
• Pediatric Oncology Group (USA) POG is a National Cancer Institute-sponsored cooperative clinical trials group of over 100 centers dedicated to controlling cancer among children and adolescents. The site details protocols, institutions, links, plus a members area.
• Radiation Therapy Oncology Group RTOG is a national research study group running radiotherapy trials in centres across the USA and Canada. The Web site includes details of trials, procedures, member institutions, meetings, abstracts, newsletter, and tissue bank.
• Radiological Society of North America A professional society founded in 1915. The Web site includes details of membership, meetings, education resources, practice resources, research, publications and medstudent resources
• Sociedade Brasileira de Cancerologia – Cancer Society of Brazil (Brazil) founded by oncologists in 1946. Portuguese language.
• Society of Gynecologic Oncologists SGO is a non-profit, international organization made up for obstetricians and gynecologists specializing in gynecologic oncology. The Web site includes details of research publications, meetings, jobs and a membership directory.
• Society of Surgical Oncology (USA) SSO, originally founded in 1940 as The James Ewing Society, promotes surgical oncology and excellence in multimodal cancer care. The site has sections on education, training and meetings. It includes abstracts, practice guidelines etc.
• South African Multiple Myeloma Foundation Search for a cure – new ideas on multiple myeloma.
• Southwest Oncology Group (USA) SWOG, founded in 1956, is a large collaborative group running clinical trials for cancer. The site includes policy statements, details of meetings, publications and has a bulletin board. Members can access protocols and do online registrations.
• Support for People with Oral and Head and Neck Cancer (SPOHNC) (USA) a not-for-profit organisation founded in 1991. SPOHNC provides for the emotional, psychological and humanistic needs of the oral and head and neck cancer. Members can subscribe to a regular Newsletter.
• Sustaining Oncology Studies (SOS Europe) English and Italian languages. SOS offers information and support for training, and research in cancer and related biomedical disciplines
• Swedish Cancer Society (Sweden) a non-profit organisation dedicated to fighting cancer through research, treatment and prevention. The Society supports the majority of cancer research in Sweden. Swedish language with some English support.
• Swiss Cancer League (Switzerland) Schweizerische Krebslinga Ligue Suisse Controle le Cancer
• Swiss Institute for Cancer Research (University of Lusanne, Switzerland) English, French, and German language
• TeleScan Telematics Services in Cancer. At 06/99 the site had not been updated since 1997.
• Union Internationale Contre le Cancer – International Union Against Cancer (UICC) This site gives information about the programs of the UICC, calendar of events, details of member organisations, publications, resources, fellowships etc.
• United Kingdom Children’s Cancer Study Group The UKCCSG is a national organisation treating children with cancer at 22 specialist centres throughout the UK. Activities include clinical trials, research and professional development. The web site includes a parent’s guide and newsletter.
• World Health Organisation (WHO) An international agency of the United Nations, founded in 1946. The Web site includes details of WHO, programs, reports, information sources for various disease and health issues including cancer and tobacco use.